Waiting Room

During the weeks before mom’s official diagnosis when she was in an out of the hospital, I remember having a conversation with my cousin Isaac in which I asked him a question that I was afraid to know the answer to, but needed to know the answer to. Isaac knew what it was to experience your mom being diagnosed and what life after that diagnosis was like. While I was aware that every diagnosis and every person/family is different, my mind that has a strong need to just “figure things out” needed to know his story. With fear I asked him, “what happens if its cancer?” He went on to give me some practical insight into the conversations regarding treatment options and things like that, but knowing the depths of what I was really asking, it was his next response that stayed with me and has shaped so many moments for me in the months that followed. He told me to imagine myself in a waiting room where there’s different doors that lead to different rooms. Maybe one says its cancer, another one says it’s not, maybe there are doors that you can’t even make out the signs on, but the thing is, you’re in the waiting room. You don’t know which door you’re going to have to walk through, so don’t walk through doors you aren’t being asked to walk through. It’s hard, but you’re in the waiting room, so you have to wait. [Isaac is one of the smartest people I know…wouldn’t you agree? He’s one of my dearest friends and life editors AND he just happens to be my cousin too! Score!]

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Yesterday’s Waiting Room

Since that conversation, I have spent more times in [literal and metaphorical] waiting rooms than I can count; waiting rooms at the doctor’s office, radiology waiting rooms, surgical waiting rooms, and of course the seemingly permanent “what if” waiting room in my mind. Can I be honest with you about something? Even after 3 years and waiting rooms becoming a frequent and normal occurrence, I still suck at the waiting. I spent a large portion of the day yesterday in the surgical waiting room and from the moment we checked mom in, they handed me a pager. I realize that [in their minds at least] it is an efficient way to keep track of the families while their loved one is in surgery and maybe provide some peace of mind and I can appreciate that sentiment, but I also kind of hate the pagers. I think I hate them because they tend to be a constant reminder of the waiting that I’m stuck doing. I can never decide if I want it to go off because these pagers are terrifying when they go off. Ask anyone that has been with me on a surgery day, I jump every time one of them goes off and it’s not even mine! You see, much like the waiting itself, when one of these pagers goes off, you have zero indication as to whether it’s good news or bad news and those moments between it going off and you walking up to the desk are the absolute worst. The truth is, this tangent about the pagers isn’t really relevant to where I’m going with this, but I just needed it to be known, I have a love/hate relationship with the pagers that is mostly hate until it buzzes with the end result of good news, at which point I love it.

Every time I find myself in one of the particularly difficult waiting rooms, I always reflect back on Isaac’s words from the very beginning of this journey. It takes a lot of mental discipline for me to refrain from walking through doors before I’ve been called to and I don’t always possess that kind of discipline. More often than I’d care to admit, I pace the waiting room (both literally and metaphorically) and I just walk up to the various “doors” just to get a glimpse of what they might possibly be if I have to walk through them. Yesterday, as I waited for the God-awful [but also glorious] pager to go off and let me know mom was okay and that I could see her, I had a new experience that added to the depths of this waiting room business. I have always been so blessed that I have never been alone in a surgical waiting room. There are always some of our people there and I can’t tell you how much “easier” the waiting can be when you have your people with you. In addition to that we have such a large network of people that walk with us in spirit and carry us in love in prayer. But yesterday I had a new experience…in the area we chose to sit in to do our waiting, there was a couple sitting there as well. It wasn’t simply because they were sitting near us, there was something else that just made my heart both ache and feel drawn to them at the same time. Throughout the day we learned that they were waiting for their 12-year-old daughter to get out of a 6-hour brain surgery. You guys, I can’t even begin to imagine their poor momma and daddy hearts, but I could see the weight in their eyes as well as the indescribable depths of love they have for their sweet girl. Through conversation I learned that the surgeon that was working on their daughter, was the only one in the country that could perform the complicated surgery that she needed. So, they traveled here from Kansas and will be spending the next 15 days post-op here in a nearby hotel. We swapped stories about how we were all too familiar with hospitals and doctors. We shared relief as they found out that their daughter made it through surgery and then tried to pass the time until they would be able to see her. We talked about the weather in Kansas versus the weather here [unrelated: I’m so glad I live in California] and what fun touristy things they had done so far. We shared the same relief when I came out of the conference room after talking with my mom’s doctor and learning that she too had made it through safely. Later in the day we ran into each and shared the most recent updates on our people and I will probably never see them again, but for those hours spent in the waiting room we became each other’s people. Because there is something that happens when you’re not only in the waiting room, but when you know the agony and pain found in that waiting. I don’t wish that on anyone because the truth is, it’s awful, but if you bear the scars of knowing what that experience is like, you have a unique opportunity to be present with someone else going through it.

I wish I didn’t know what it was like, but I do and because I do, I was able to sit in a sacred space with strangers from another state [that I never even exchanged names with, social awkwardness for the win!] and help carry their burden and they helped carry mine. And when I reflect back on the day yesterday, and the last three years, I woke up this morning completely overwhelmed by gratitude. I am grateful for my waiting room friends. I am grateful that both of our people made it safely through surgery. I am grateful for every, single, painful moment that I have experienced that allowed me to lock eyes with those sweet parents and share a “me too” moment. Friends, I’m grateful for the waiting room because even though I hate it, it has become the place in which I am always met by the unending love, sweet compassion, and all sufficient grace of The One that holds me in the waiting and knows what lies beyond the waiting.

If you find yourself in one of life’s waiting rooms today and you’re hating it, just know that you are actually being equipped to one day come alongside someone in a way that no one else can because of the waiting you are going through now. And if you’re feeling a little lonely in your waiting today, let me come alongside you and hold space for you in that waiting. You’re not alone friend.

*If you think of my waiting room friends from Kansas, would you say a prayer for them? Pray for their sweet girl and speedy recovery so they can get back home to all their people*

Thanks for always walking with us in the waiting,

Leslie Danielle

World Cancer Day

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It’s strange, though not surprising, that today is World Cancer Day and I happened to have standing plans to drive my grandma and great grandma to a doctor’s appointment. Out of all the doctors’ offices in Anaheim, my great grandma’s doctor’s office happens to be at Anaheim Regional Medical Center.  I sat in the parking lot and stared at the building where mom’s cancer journey began; it feels like lifetimes ago. I was having flashbacks to those first moments: “Your scan showed a large mass on your ovary that could indicate cancer.” I remember the deafening silence that followed. I remember writing these words during that hospital stay at Anaheim Regional:

Faith is so much easier to have when you don’t really need it. Sounds silly, I know. But you see, it’s the middle of the night and I’m sitting in a chair at my mom’s bedside in the hospital. I’ve always been unnerved in hospitals, but never like this. More than the eeriness of walking the hallways, or the awareness of all of the sickness here, or the strange noises coming from a patient down the hall, or the smell…you know what the most unnerving thing is? Sitting here in a dark room that is filled to the brim with questions, but completely void of answers. I like to think I have a pretty good head on my shoulders, but these are the kinds of questions that I can’t answer.

 

“Will my mom be okay?”

“Is it cancer?”

“If it is cancer, will she be okay?”

“If it is cancer, will we all be okay?”

“9 months after losing my dad, why is this happening?”

 Like I said, it feels like lifetimes ago. I got answers to most of those questions, except that last one. Nearly two years later we are all okay. This time two years ago we were in our last weeks of life as we knew it; life before cancer. During those first days and weeks when you’re still in shock upon receiving a diagnosis, it’s easy to feel like a victim of this disease. I mean, it is attacking you, but there’s this shift that happens as the shock begins to wear off. Most of us go through life thinking that cancer is something that happens to other people, and other families, it will never happen to you…and then it does. All of a sudden it was my mom who had cancer. And cancer goes from being a powerless word of something that happens to other people, to this dark, powerful enemy, that is attacking you or someone you love from the inside out.

Mom, Daniel, and I the morning of mom's surgery before heading to the hospital 08/23/14

Mom, Daniel, and I the morning of mom’s surgery before heading to the hospital 08/23/14

Shortly after this happens you are faced with a choice and it is possibly one of the most important choices you will ever make. You have to choose between being a victim of cancer or to be a fighter and survivor of cancer. I thank God everyday that he gave my mom the resolve and determination to fight like hell. It might seem like an easy choice, who wouldn’t want to live? But it isn’t as simple as choosing life because what you’re really choosing is life with cancer. And life with cancer means hospitalizations, surgeries, treatment, side effects etc. It takes a strong person to choose life with cancer. It is not an easy life. It’s a life filled with countless doctor visits, pain, fear, isolation, long treatments, and a lot of days where you feel lousy.

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I think as a culture we tend to give a sympathetic head tilt to someone battling cancer and maybe there is a time where that is helpful. But after walking alongside my mom through two cancer battles I think a more appropriate response to someone living with cancer might be applause, standing ovations, and endless high fives. What I’ve learned watching my mom and others throughout the course of her treatment is that they are the brave and courageous ones among us.

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Everyday they are faced with the reality of their own mortality, battling a disease that could take their lives, but they get up, face the truth, and still, they choose to fight. The truth is, we each face the same mortality, but most of us choose to live life as though it isn’t so. Even after remission, a cancer survivor never goes back to life before cancer. Sure, on the outside it may seem that way, but on the inside nothing is the same. They continue “fighting” cancer long after it’s left their bodies. After a cancer diagnosis, a headache is never just a headache again. There’s that fear and nagging question “Is the cancer back?” I experienced this with my mom just last month when we found out she had fractured her leg. For someone who hasn’t ever been diagnosed with cancer a fracture would be simple enough to diagnose and soon you’d be on your way. For my mom, there was the slight suspicion that her fracture could have been a result of cancer spread. She was hospitalized for a couple of days and during that time she had a bone scan to rule out cancer. Thankfully there was no sign of it and it actually is just a fracture. A cancer survivor isn’t someone who “survived” cancer, it is someone who is surviving and living even beyond cancer. It is someone who chooses to embody what it means to be a survivor rather than a victim of cancer. The temptation is always there to live under the dark cloud of fear and what ifs, but continuing to choose life is what makes them true survivors.

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Cancer patients are the gems among us that, truth be told, we look away from when we see because we don’t want to face our own mortality. I saw this so clearly during my mom’s cancer treatment, people in her life that I thought for sure would walk beside her were nowhere to be found. When the reality is, we should be taking notes; because I think when we’re honest we all want to live brave and courageous lives. We can start by being brave and courageous enough to not look the other way, but instead walk alongside those battling cancer.

Mom joining UCI and #TheAntiCancer movement

Mom joining UCI and #TheAntiCancer movement

Mom rockin' her freshly shaved head

Mom rockin’ her freshly shaved head

If I could go back and somehow spare my mom of her cancer diagnosis, most of the time I think I would…but when I ask her if she would trade it her answer is always no. Because of her bravery and courage, she can see the value in the journey. Relationships that were formed, lessons that were learned, a fire in her heart to live that might have stayed only just a flicker. The list can go on and on. Everyday she chooses life, joy, and gratitude. And I’m amazed by her all the time, but today as we raise awareness, share our stories, pause and remember those who were taken too soon by this disease, I want to take a moment to honor the choice she made to fight, even when she wanted to give up. She is my inspiration and my hero. Momma, consider this your virtual applause and standing ovation.

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I hope that in my lifetime I get to see a definitive cure for all forms of this disease and I am grateful for the men and women who dedicate their lives to research and science to make this hope a reality. I am especially grateful for the amazing doctors that joined mom’s dream team and continue to care for and support her.

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None of us know what tomorrow will bring, tell the ones you love that you love them and tonight hold them just a little tighter and just a few seconds longer.

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112 Days

Last December when we found out that after an exhausting, brutal fight, mom was cancer free, we put together a video to announce our good news. You can watch that video here: http://youtu.be/EVt7khQH9qM Since then, that video has had quite a bit of circulation within our UCI family, and we hope that it goes on to inspire and encourage anyone who sees it. We ended that video with a screen that simply says: “Onto the next chapter…”

But the next chapter didn’t turn out the way we had hoped or imagined. Earlier this year when we first found out that mom’s cancer had come back we were all hit with several waves of different emotions. Fear. Anger. Disappointment. Frustration. It felt as though we had barely had time to start catching our breath from the first cancer battle. We knew that recurrence was always a possibility, but if we would have to face it again, we had hoped for more time before having to do it all again. I think within our family, we all struggled to accept the second diagnosis, at times, more than the first one. The first time mom was diagnosed, she was really sick and it was visible and painfully evident. The second time, she was herself, there was really no indication that anything was wrong, but the bloodwork and scans proved that there was…the cancer had come back. Granted, it was nowhere near what it had been before, and mom’s quality of life was still the same, but cancer is cancer. And once you’ve heard that diagnosis once, you never want to hear it again. But as is life, cancer is unpredictable and we had to choose to move forward in hope and faith that God would allow medicine to heal once again

Mom visiting with a pet therapy dog named Ella on her first day of treatment June 2014

Mom visiting with a pet therapy dog named Ella on her first day of treatment June 2014

As we moved forward to make a plan with her team of doctors, mom was faced with the decision to join a clinical study for treatment or just pursue the current standard treatment; it was a no brainer. With a little fear and apprehension, but mostly joy and excitement she joined the study. It is important to her and is something she is proud to be a part of. At some point before her first diagnosis there were people who signed on to join a study for the drugs and treatments that helped save her life. In an act of gratitude and with a deeply rooted desire to give back, she said yes to doing her part to help find even better treatments, in the hopes that one day, we will see a definitive cure for this disease.

Mom's study drug AKA her "kool-aid"

Mom’s study drug AKA her “kool-aid”

112 days ago we walked in to the Cancer Center at UCI for her first treatment. We had walked in here countless times before for lab work and previous treatments, but this time was different. We were at the start of this fight and as she has learned to do so well, mom appropriately had her fight face on. She was ready to walk into battle with no other possible outcome but winning. It was a completely different experience in comparison to the last time she received treatment and I could only identify it as one thing: she knew what it was to win. The previous times she had received treatment during her first battle, she had hoped that it would work and that she would beat cancer, but she hadn’t yet experienced what it was to be told “you’re cancer free.” So what made this time different? She walked in that first day of treatment 112 days ago already a survivor. These walls, nurses, procedures etc. weren’t unfamiliar; they were a kind of home and safe place. Naturally there was fear, hesitation, and apprehension going into treatment, but it was put at ease because she didn’t have to wonder what survival felt like…she was already a survivor.

This is her "fight face" taken 5 days into her first cycle of chemo

This is her “fight face” taken 5 days into her first cycle of chemo

In comparison to her first battle, the side effects were minimal this time around and for that we are so grateful. The biggest and most traumatic one was the loss of her hair. But as she has done so well, so many times before, she proved her bravery yet again by shaving it off. This is the part where I gush about my mom even more than usual. To those of us who haven’t been through what she has, it might seem like an easy thing to shave off all of your hair and we would all be very wrong. My mom made that decision for herself; she was not going to let cancer take anything else from her. Her decision to shave her head was a declaration to cancer that she was not going to hand over her power to it. She is brave. It might be easy to think that with all the ways we try and bring awareness to cancer that most people would be comfortable with a bald woman…let me clear up that confusion…it still makes most people uncomfortable. That fact combined with the twisted views our society has about beauty, all I can say is we still have a long way to go. But like I said, my mom is brave. And I have seen her walk confidently in any and every situation, and it is her hope, as it is mine, that her bravery will help empower other women going through it, but also that it would help teach us that it is not something that we need to look away from, but embrace, support and encourage. She is brave, and it makes me brave.

Mom rockin' her freshly shaved head

Mom rockin’ her freshly shaved head

I know this is a long post, maybe longer than usual, but stick with me because it’s about to get really good…

Yesterday we received the news that mom is CANCER FREE once again!! She received her final treatment this morning!! We hope and pray that it was her last one ever, but we trust God and his plans for the future and today we celebrate this moment!

Mom walking out of UCI after hearing that she is CANCER FREE again October 13, 2014

Mom walking out of UCI after hearing that she is CANCER FREE again October 13, 2014

Our hearts are overflowing with joy and we hope that you join us in this so this joy can be multiplied. Yet, in the midst of that joy, we ask that you pause with us to honor and pray for all those that are fighting this vicious disease and remember those who have not had the outcomes that they had hoped for and pray for their families. I hope and pray we all get to see a day where this disease is 100% curable, but until that day we need to be vigilant and support all those that are walking through it.

Mom joining UCI and #TheAntiCancer movement

Mom joining UCI and #TheAntiCancer movement

There is no better way to end this post than by expressing our deepest gratitude. God has been so faithful and has blessed us so far beyond what we could have ever hoped or imagined. And one of the biggest blessings he has given us is our support system. I wish I could list each one of you that has joined mom’s team to help her win this fight, but this is already pretty long so I will just do a few groups of people 🙂

  • To our family: thank you for committing to walk alongside us once again and for expressing your love and support in so many beautiful ways. You have held up our family in love and prayers and we could not imagine going through this without you. You fill our lives with joy, laughter, and more love than we can describe. We love you so much!
  • To all of our friends: thank you for your constant prayers, encouragement, and love. You help us see beauty of community: sorrows divided and joys multiplied.
  • To the incredible UCI staff, from the valet attendants, to the check in desk, to the nurses and aides, and study coordinator, thank you for your gift of making a difficult journey a little bit easier. You shine your lights so brightly and add warmth, joy, and love to a place that could be cold, sad, and lonely.
  • And lastly, a very special thanks to Dr. Berman and Dr. Eskander. You are the coaches of our dream team and we can’t imagine this journey without you! Your commitment, excellence, hard work, and “cautious optimism” have journeyed with us and we have the privilege of walking out on the other end once again alongside two of the most gifted human beings we have ever known. Though you are truly remarkable doctors, your gifts go so far beyond the medicine, your compassion and dedication to caring for the whole patient has made all the difference! The world needs more people like you and we are grateful, honored, and humbled to know you. We think of you and pray for you often, thank you for your permanent mark on our lives.

As the cancer free finish line got closer and closer, there were questions about how we would announce it since mom’s video from last time was such a success and my response is this: no one goes into their wedding, planning for their second wedding. The hope and idea is that you only do this once. However, God saw fit that mom fight this fight again, and so there isn’t a beautifully edited video chronicling mom’s journey this time. Instead, I decided to sit at the computer and pour my heart out and celebrate mom’s journey the best way I know how.

With the hospital behind her, remembering how far she has come, celebrating a win once again October 13, 2014

With the hospital behind her, remembering how far she has come, celebrating a win once again October 13, 2014

Thank you again to everyone who has prayed, sent positive thoughts, loved, and supported my mom and our family throughout this time. We love you more than you know!

And so we say again: On to the next chapter…

Light and Love,

The Lopez Family