Waiting Room

During the weeks before mom’s official diagnosis when she was in an out of the hospital, I remember having a conversation with my cousin Isaac in which I asked him a question that I was afraid to know the answer to, but needed to know the answer to. Isaac knew what it was to experience your mom being diagnosed and what life after that diagnosis was like. While I was aware that every diagnosis and every person/family is different, my mind that has a strong need to just “figure things out” needed to know his story. With fear I asked him, “what happens if its cancer?” He went on to give me some practical insight into the conversations regarding treatment options and things like that, but knowing the depths of what I was really asking, it was his next response that stayed with me and has shaped so many moments for me in the months that followed. He told me to imagine myself in a waiting room where there’s different doors that lead to different rooms. Maybe one says its cancer, another one says it’s not, maybe there are doors that you can’t even make out the signs on, but the thing is, you’re in the waiting room. You don’t know which door you’re going to have to walk through, so don’t walk through doors you aren’t being asked to walk through. It’s hard, but you’re in the waiting room, so you have to wait. [Isaac is one of the smartest people I know…wouldn’t you agree? He’s one of my dearest friends and life editors AND he just happens to be my cousin too! Score!]

waiting room

Yesterday’s Waiting Room

Since that conversation, I have spent more times in [literal and metaphorical] waiting rooms than I can count; waiting rooms at the doctor’s office, radiology waiting rooms, surgical waiting rooms, and of course the seemingly permanent “what if” waiting room in my mind. Can I be honest with you about something? Even after 3 years and waiting rooms becoming a frequent and normal occurrence, I still suck at the waiting. I spent a large portion of the day yesterday in the surgical waiting room and from the moment we checked mom in, they handed me a pager. I realize that [in their minds at least] it is an efficient way to keep track of the families while their loved one is in surgery and maybe provide some peace of mind and I can appreciate that sentiment, but I also kind of hate the pagers. I think I hate them because they tend to be a constant reminder of the waiting that I’m stuck doing. I can never decide if I want it to go off because these pagers are terrifying when they go off. Ask anyone that has been with me on a surgery day, I jump every time one of them goes off and it’s not even mine! You see, much like the waiting itself, when one of these pagers goes off, you have zero indication as to whether it’s good news or bad news and those moments between it going off and you walking up to the desk are the absolute worst. The truth is, this tangent about the pagers isn’t really relevant to where I’m going with this, but I just needed it to be known, I have a love/hate relationship with the pagers that is mostly hate until it buzzes with the end result of good news, at which point I love it.

Every time I find myself in one of the particularly difficult waiting rooms, I always reflect back on Isaac’s words from the very beginning of this journey. It takes a lot of mental discipline for me to refrain from walking through doors before I’ve been called to and I don’t always possess that kind of discipline. More often than I’d care to admit, I pace the waiting room (both literally and metaphorically) and I just walk up to the various “doors” just to get a glimpse of what they might possibly be if I have to walk through them. Yesterday, as I waited for the God-awful [but also glorious] pager to go off and let me know mom was okay and that I could see her, I had a new experience that added to the depths of this waiting room business. I have always been so blessed that I have never been alone in a surgical waiting room. There are always some of our people there and I can’t tell you how much “easier” the waiting can be when you have your people with you. In addition to that we have such a large network of people that walk with us in spirit and carry us in love in prayer. But yesterday I had a new experience…in the area we chose to sit in to do our waiting, there was a couple sitting there as well. It wasn’t simply because they were sitting near us, there was something else that just made my heart both ache and feel drawn to them at the same time. Throughout the day we learned that they were waiting for their 12-year-old daughter to get out of a 6-hour brain surgery. You guys, I can’t even begin to imagine their poor momma and daddy hearts, but I could see the weight in their eyes as well as the indescribable depths of love they have for their sweet girl. Through conversation I learned that the surgeon that was working on their daughter, was the only one in the country that could perform the complicated surgery that she needed. So, they traveled here from Kansas and will be spending the next 15 days post-op here in a nearby hotel. We swapped stories about how we were all too familiar with hospitals and doctors. We shared relief as they found out that their daughter made it through surgery and then tried to pass the time until they would be able to see her. We talked about the weather in Kansas versus the weather here [unrelated: I’m so glad I live in California] and what fun touristy things they had done so far. We shared the same relief when I came out of the conference room after talking with my mom’s doctor and learning that she too had made it through safely. Later in the day we ran into each and shared the most recent updates on our people and I will probably never see them again, but for those hours spent in the waiting room we became each other’s people. Because there is something that happens when you’re not only in the waiting room, but when you know the agony and pain found in that waiting. I don’t wish that on anyone because the truth is, it’s awful, but if you bear the scars of knowing what that experience is like, you have a unique opportunity to be present with someone else going through it.

I wish I didn’t know what it was like, but I do and because I do, I was able to sit in a sacred space with strangers from another state [that I never even exchanged names with, social awkwardness for the win!] and help carry their burden and they helped carry mine. And when I reflect back on the day yesterday, and the last three years, I woke up this morning completely overwhelmed by gratitude. I am grateful for my waiting room friends. I am grateful that both of our people made it safely through surgery. I am grateful for every, single, painful moment that I have experienced that allowed me to lock eyes with those sweet parents and share a “me too” moment. Friends, I’m grateful for the waiting room because even though I hate it, it has become the place in which I am always met by the unending love, sweet compassion, and all sufficient grace of The One that holds me in the waiting and knows what lies beyond the waiting.

If you find yourself in one of life’s waiting rooms today and you’re hating it, just know that you are actually being equipped to one day come alongside someone in a way that no one else can because of the waiting you are going through now. And if you’re feeling a little lonely in your waiting today, let me come alongside you and hold space for you in that waiting. You’re not alone friend.

*If you think of my waiting room friends from Kansas, would you say a prayer for them? Pray for their sweet girl and speedy recovery so they can get back home to all their people*

Thanks for always walking with us in the waiting,

Leslie Danielle

112 Days

Last December when we found out that after an exhausting, brutal fight, mom was cancer free, we put together a video to announce our good news. You can watch that video here: http://youtu.be/EVt7khQH9qM Since then, that video has had quite a bit of circulation within our UCI family, and we hope that it goes on to inspire and encourage anyone who sees it. We ended that video with a screen that simply says: “Onto the next chapter…”

But the next chapter didn’t turn out the way we had hoped or imagined. Earlier this year when we first found out that mom’s cancer had come back we were all hit with several waves of different emotions. Fear. Anger. Disappointment. Frustration. It felt as though we had barely had time to start catching our breath from the first cancer battle. We knew that recurrence was always a possibility, but if we would have to face it again, we had hoped for more time before having to do it all again. I think within our family, we all struggled to accept the second diagnosis, at times, more than the first one. The first time mom was diagnosed, she was really sick and it was visible and painfully evident. The second time, she was herself, there was really no indication that anything was wrong, but the bloodwork and scans proved that there was…the cancer had come back. Granted, it was nowhere near what it had been before, and mom’s quality of life was still the same, but cancer is cancer. And once you’ve heard that diagnosis once, you never want to hear it again. But as is life, cancer is unpredictable and we had to choose to move forward in hope and faith that God would allow medicine to heal once again

Mom visiting with a pet therapy dog named Ella on her first day of treatment June 2014

Mom visiting with a pet therapy dog named Ella on her first day of treatment June 2014

As we moved forward to make a plan with her team of doctors, mom was faced with the decision to join a clinical study for treatment or just pursue the current standard treatment; it was a no brainer. With a little fear and apprehension, but mostly joy and excitement she joined the study. It is important to her and is something she is proud to be a part of. At some point before her first diagnosis there were people who signed on to join a study for the drugs and treatments that helped save her life. In an act of gratitude and with a deeply rooted desire to give back, she said yes to doing her part to help find even better treatments, in the hopes that one day, we will see a definitive cure for this disease.

Mom's study drug AKA her "kool-aid"

Mom’s study drug AKA her “kool-aid”

112 days ago we walked in to the Cancer Center at UCI for her first treatment. We had walked in here countless times before for lab work and previous treatments, but this time was different. We were at the start of this fight and as she has learned to do so well, mom appropriately had her fight face on. She was ready to walk into battle with no other possible outcome but winning. It was a completely different experience in comparison to the last time she received treatment and I could only identify it as one thing: she knew what it was to win. The previous times she had received treatment during her first battle, she had hoped that it would work and that she would beat cancer, but she hadn’t yet experienced what it was to be told “you’re cancer free.” So what made this time different? She walked in that first day of treatment 112 days ago already a survivor. These walls, nurses, procedures etc. weren’t unfamiliar; they were a kind of home and safe place. Naturally there was fear, hesitation, and apprehension going into treatment, but it was put at ease because she didn’t have to wonder what survival felt like…she was already a survivor.

This is her "fight face" taken 5 days into her first cycle of chemo

This is her “fight face” taken 5 days into her first cycle of chemo

In comparison to her first battle, the side effects were minimal this time around and for that we are so grateful. The biggest and most traumatic one was the loss of her hair. But as she has done so well, so many times before, she proved her bravery yet again by shaving it off. This is the part where I gush about my mom even more than usual. To those of us who haven’t been through what she has, it might seem like an easy thing to shave off all of your hair and we would all be very wrong. My mom made that decision for herself; she was not going to let cancer take anything else from her. Her decision to shave her head was a declaration to cancer that she was not going to hand over her power to it. She is brave. It might be easy to think that with all the ways we try and bring awareness to cancer that most people would be comfortable with a bald woman…let me clear up that confusion…it still makes most people uncomfortable. That fact combined with the twisted views our society has about beauty, all I can say is we still have a long way to go. But like I said, my mom is brave. And I have seen her walk confidently in any and every situation, and it is her hope, as it is mine, that her bravery will help empower other women going through it, but also that it would help teach us that it is not something that we need to look away from, but embrace, support and encourage. She is brave, and it makes me brave.

Mom rockin' her freshly shaved head

Mom rockin’ her freshly shaved head

I know this is a long post, maybe longer than usual, but stick with me because it’s about to get really good…

Yesterday we received the news that mom is CANCER FREE once again!! She received her final treatment this morning!! We hope and pray that it was her last one ever, but we trust God and his plans for the future and today we celebrate this moment!

Mom walking out of UCI after hearing that she is CANCER FREE again October 13, 2014

Mom walking out of UCI after hearing that she is CANCER FREE again October 13, 2014

Our hearts are overflowing with joy and we hope that you join us in this so this joy can be multiplied. Yet, in the midst of that joy, we ask that you pause with us to honor and pray for all those that are fighting this vicious disease and remember those who have not had the outcomes that they had hoped for and pray for their families. I hope and pray we all get to see a day where this disease is 100% curable, but until that day we need to be vigilant and support all those that are walking through it.

Mom joining UCI and #TheAntiCancer movement

Mom joining UCI and #TheAntiCancer movement

There is no better way to end this post than by expressing our deepest gratitude. God has been so faithful and has blessed us so far beyond what we could have ever hoped or imagined. And one of the biggest blessings he has given us is our support system. I wish I could list each one of you that has joined mom’s team to help her win this fight, but this is already pretty long so I will just do a few groups of people 🙂

  • To our family: thank you for committing to walk alongside us once again and for expressing your love and support in so many beautiful ways. You have held up our family in love and prayers and we could not imagine going through this without you. You fill our lives with joy, laughter, and more love than we can describe. We love you so much!
  • To all of our friends: thank you for your constant prayers, encouragement, and love. You help us see beauty of community: sorrows divided and joys multiplied.
  • To the incredible UCI staff, from the valet attendants, to the check in desk, to the nurses and aides, and study coordinator, thank you for your gift of making a difficult journey a little bit easier. You shine your lights so brightly and add warmth, joy, and love to a place that could be cold, sad, and lonely.
  • And lastly, a very special thanks to Dr. Berman and Dr. Eskander. You are the coaches of our dream team and we can’t imagine this journey without you! Your commitment, excellence, hard work, and “cautious optimism” have journeyed with us and we have the privilege of walking out on the other end once again alongside two of the most gifted human beings we have ever known. Though you are truly remarkable doctors, your gifts go so far beyond the medicine, your compassion and dedication to caring for the whole patient has made all the difference! The world needs more people like you and we are grateful, honored, and humbled to know you. We think of you and pray for you often, thank you for your permanent mark on our lives.

As the cancer free finish line got closer and closer, there were questions about how we would announce it since mom’s video from last time was such a success and my response is this: no one goes into their wedding, planning for their second wedding. The hope and idea is that you only do this once. However, God saw fit that mom fight this fight again, and so there isn’t a beautifully edited video chronicling mom’s journey this time. Instead, I decided to sit at the computer and pour my heart out and celebrate mom’s journey the best way I know how.

With the hospital behind her, remembering how far she has come, celebrating a win once again October 13, 2014

With the hospital behind her, remembering how far she has come, celebrating a win once again October 13, 2014

Thank you again to everyone who has prayed, sent positive thoughts, loved, and supported my mom and our family throughout this time. We love you more than you know!

And so we say again: On to the next chapter…

Light and Love,

The Lopez Family

 

With A Full Heart…

It is hard to put into words all that I feel in my heart tonight, but I wouldn’t be me if I didn’t try so here it goes…

In the early hours of this morning as we were at home preparing to make the trip here to the hospital for mom’s surgery, the fear and anxiety were tangible. And while it may seem contradictory, peace and faith were just as present. I saw it in my mom’s eyes, her eyes spoke what we all felt on different levels; “Is this really gonna be okay?”

Mom, Daniel, and I early this morning before heading to this hospital

Mom, Daniel, and I early this morning before heading to this hospital

 We got to the hospital, got her all checked in and then we waited. When they called her back to pre-op, I was relieved to find out that I could go and be with her until they wheeled her off to the Operating Room. The fear and nervousness were still evident, but they were now accompanied by a really strange exhilaration and excitement. The last 6 months had been leading up to this moment. There was both peace and anxiety as we said our “see you soons” and off she went.

 When we had first gone to pre-op, none of the family had arrived yet, but by the time I came out after they took mom to the OR I walked out into the arms of some of the greatest people in my world. And then we sat and we waited…

Entrance to the UCI Surgical Procedure Waiting Area where we spent most of the day.

Entrance to the UCI Surgical Procedure Waiting Area where we spent most of the day.

I was much more at ease than I thought I would be overall, but there were those moments when fear and doubt would try to creep in. And with the love of those around me, and all the people that have walked with us in prayer, I was quickly reminded of all that God has already brought us through and peace would return.

 When we first checked in, they gave me this pager so that they could get a hold of me if they needed to, and to keep me updated throughout the day. To say I was attached to it would be an understatement. I was downstairs just about to head back up to the waiting area when my pager went off; panic and fear kicked in as I ran up the stairs and saw our doctor standing in the waiting area. I made my way to him as quickly as I could and then we went into the consult room. Now, this is the attending doctor on my mom’s oncology team and he is one of the best in his field, but he is on the serious side and so I had to really listen to his words carefully. I tried to catch my breath from running up the stairs and back to the waiting area as he began. His expression was not indicative of whether or not this was good news so I did my best to really focus in on what he was saying. And it slowly began to register. “We successfully removed the tumors and completed everything else we intended to do, there were no surprises, she didn’t lose much blood and when I left they were just finishing up the closing process. In no way can this surgery be curative, but with some more chemotherapy, if she continues to respond as well as she already has, it’s possible she will be feeling good for a long time. The surgery went as well as we could have hoped.”

 Shaking and overwhelmed and trying to process everything I had just been told, I got to go back out into the waiting room and tell everyone else the good news. My heart was relieved, overjoyed and anxious as I had to wait in anticipation for the moment they would let us see her in recovery. About an hour or so later, Daniel and I were able to go back and see her. I don’t think there are words to describe what I felt seeing her. Her eyes and smile lit up when she saw us and it’s safe to say she saw the same thing in ours. Since she hadn’t been awake for very long, she hadn’t heard the news yet. We explained to her that surgery was successful and that they got everything, in disbelief she said “Really?” We said “Yes, mom, you did it.” And immediately she said “Thank you Jesus.” That’s my mom.

 Now I’m sitting here as we prepare to settle in for the night and I can’t stop looking at her. I cannot possibly express how grateful I am tonight to be able to look over and see her, though in pain, still focused on the fight. Still here with us…because He is with us. A little bit ago mom and I were talking about how on this side of surgery we wonder what we were so afraid of, but the reality is that it was really big, scary and a huge risk. It was a big deal. And I told her how I wonder if it had to be big because only in a moment like that would choosing to trust Him be a true test of faith. Though, often times, still with doubt and worry, because of her strength and example we made the decision to trust and surrender to Him and His will. Tonight I sit here in awe of the remarkable woman I get to call mom and I cannot thank Him enough for His goodness and His grace.

 Friends and Family, I have been so blown away by your love and support; you all have been so amazing. We are humbled and indescribably grateful for all that have stood with us in prayer as we have walked this road. I pray that His light and love surround you tonight, and always. Please know that I pray for you and thank God for you.

 With unending love and gratitude,

Leslie Danielle