Waiting Room

During the weeks before mom’s official diagnosis when she was in an out of the hospital, I remember having a conversation with my cousin Isaac in which I asked him a question that I was afraid to know the answer to, but needed to know the answer to. Isaac knew what it was to experience your mom being diagnosed and what life after that diagnosis was like. While I was aware that every diagnosis and every person/family is different, my mind that has a strong need to just “figure things out” needed to know his story. With fear I asked him, “what happens if its cancer?” He went on to give me some practical insight into the conversations regarding treatment options and things like that, but knowing the depths of what I was really asking, it was his next response that stayed with me and has shaped so many moments for me in the months that followed. He told me to imagine myself in a waiting room where there’s different doors that lead to different rooms. Maybe one says its cancer, another one says it’s not, maybe there are doors that you can’t even make out the signs on, but the thing is, you’re in the waiting room. You don’t know which door you’re going to have to walk through, so don’t walk through doors you aren’t being asked to walk through. It’s hard, but you’re in the waiting room, so you have to wait. [Isaac is one of the smartest people I know…wouldn’t you agree? He’s one of my dearest friends and life editors AND he just happens to be my cousin too! Score!]

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Yesterday’s Waiting Room

Since that conversation, I have spent more times in [literal and metaphorical] waiting rooms than I can count; waiting rooms at the doctor’s office, radiology waiting rooms, surgical waiting rooms, and of course the seemingly permanent “what if” waiting room in my mind. Can I be honest with you about something? Even after 3 years and waiting rooms becoming a frequent and normal occurrence, I still suck at the waiting. I spent a large portion of the day yesterday in the surgical waiting room and from the moment we checked mom in, they handed me a pager. I realize that [in their minds at least] it is an efficient way to keep track of the families while their loved one is in surgery and maybe provide some peace of mind and I can appreciate that sentiment, but I also kind of hate the pagers. I think I hate them because they tend to be a constant reminder of the waiting that I’m stuck doing. I can never decide if I want it to go off because these pagers are terrifying when they go off. Ask anyone that has been with me on a surgery day, I jump every time one of them goes off and it’s not even mine! You see, much like the waiting itself, when one of these pagers goes off, you have zero indication as to whether it’s good news or bad news and those moments between it going off and you walking up to the desk are the absolute worst. The truth is, this tangent about the pagers isn’t really relevant to where I’m going with this, but I just needed it to be known, I have a love/hate relationship with the pagers that is mostly hate until it buzzes with the end result of good news, at which point I love it.

Every time I find myself in one of the particularly difficult waiting rooms, I always reflect back on Isaac’s words from the very beginning of this journey. It takes a lot of mental discipline for me to refrain from walking through doors before I’ve been called to and I don’t always possess that kind of discipline. More often than I’d care to admit, I pace the waiting room (both literally and metaphorically) and I just walk up to the various “doors” just to get a glimpse of what they might possibly be if I have to walk through them. Yesterday, as I waited for the God-awful [but also glorious] pager to go off and let me know mom was okay and that I could see her, I had a new experience that added to the depths of this waiting room business. I have always been so blessed that I have never been alone in a surgical waiting room. There are always some of our people there and I can’t tell you how much “easier” the waiting can be when you have your people with you. In addition to that we have such a large network of people that walk with us in spirit and carry us in love in prayer. But yesterday I had a new experience…in the area we chose to sit in to do our waiting, there was a couple sitting there as well. It wasn’t simply because they were sitting near us, there was something else that just made my heart both ache and feel drawn to them at the same time. Throughout the day we learned that they were waiting for their 12-year-old daughter to get out of a 6-hour brain surgery. You guys, I can’t even begin to imagine their poor momma and daddy hearts, but I could see the weight in their eyes as well as the indescribable depths of love they have for their sweet girl. Through conversation I learned that the surgeon that was working on their daughter, was the only one in the country that could perform the complicated surgery that she needed. So, they traveled here from Kansas and will be spending the next 15 days post-op here in a nearby hotel. We swapped stories about how we were all too familiar with hospitals and doctors. We shared relief as they found out that their daughter made it through surgery and then tried to pass the time until they would be able to see her. We talked about the weather in Kansas versus the weather here [unrelated: I’m so glad I live in California] and what fun touristy things they had done so far. We shared the same relief when I came out of the conference room after talking with my mom’s doctor and learning that she too had made it through safely. Later in the day we ran into each and shared the most recent updates on our people and I will probably never see them again, but for those hours spent in the waiting room we became each other’s people. Because there is something that happens when you’re not only in the waiting room, but when you know the agony and pain found in that waiting. I don’t wish that on anyone because the truth is, it’s awful, but if you bear the scars of knowing what that experience is like, you have a unique opportunity to be present with someone else going through it.

I wish I didn’t know what it was like, but I do and because I do, I was able to sit in a sacred space with strangers from another state [that I never even exchanged names with, social awkwardness for the win!] and help carry their burden and they helped carry mine. And when I reflect back on the day yesterday, and the last three years, I woke up this morning completely overwhelmed by gratitude. I am grateful for my waiting room friends. I am grateful that both of our people made it safely through surgery. I am grateful for every, single, painful moment that I have experienced that allowed me to lock eyes with those sweet parents and share a “me too” moment. Friends, I’m grateful for the waiting room because even though I hate it, it has become the place in which I am always met by the unending love, sweet compassion, and all sufficient grace of The One that holds me in the waiting and knows what lies beyond the waiting.

If you find yourself in one of life’s waiting rooms today and you’re hating it, just know that you are actually being equipped to one day come alongside someone in a way that no one else can because of the waiting you are going through now. And if you’re feeling a little lonely in your waiting today, let me come alongside you and hold space for you in that waiting. You’re not alone friend.

*If you think of my waiting room friends from Kansas, would you say a prayer for them? Pray for their sweet girl and speedy recovery so they can get back home to all their people*

Thanks for always walking with us in the waiting,

Leslie Danielle

World Cancer Day

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It’s strange, though not surprising, that today is World Cancer Day and I happened to have standing plans to drive my grandma and great grandma to a doctor’s appointment. Out of all the doctors’ offices in Anaheim, my great grandma’s doctor’s office happens to be at Anaheim Regional Medical Center.  I sat in the parking lot and stared at the building where mom’s cancer journey began; it feels like lifetimes ago. I was having flashbacks to those first moments: “Your scan showed a large mass on your ovary that could indicate cancer.” I remember the deafening silence that followed. I remember writing these words during that hospital stay at Anaheim Regional:

Faith is so much easier to have when you don’t really need it. Sounds silly, I know. But you see, it’s the middle of the night and I’m sitting in a chair at my mom’s bedside in the hospital. I’ve always been unnerved in hospitals, but never like this. More than the eeriness of walking the hallways, or the awareness of all of the sickness here, or the strange noises coming from a patient down the hall, or the smell…you know what the most unnerving thing is? Sitting here in a dark room that is filled to the brim with questions, but completely void of answers. I like to think I have a pretty good head on my shoulders, but these are the kinds of questions that I can’t answer.

 

“Will my mom be okay?”

“Is it cancer?”

“If it is cancer, will she be okay?”

“If it is cancer, will we all be okay?”

“9 months after losing my dad, why is this happening?”

 Like I said, it feels like lifetimes ago. I got answers to most of those questions, except that last one. Nearly two years later we are all okay. This time two years ago we were in our last weeks of life as we knew it; life before cancer. During those first days and weeks when you’re still in shock upon receiving a diagnosis, it’s easy to feel like a victim of this disease. I mean, it is attacking you, but there’s this shift that happens as the shock begins to wear off. Most of us go through life thinking that cancer is something that happens to other people, and other families, it will never happen to you…and then it does. All of a sudden it was my mom who had cancer. And cancer goes from being a powerless word of something that happens to other people, to this dark, powerful enemy, that is attacking you or someone you love from the inside out.

Mom, Daniel, and I the morning of mom's surgery before heading to the hospital 08/23/14

Mom, Daniel, and I the morning of mom’s surgery before heading to the hospital 08/23/14

Shortly after this happens you are faced with a choice and it is possibly one of the most important choices you will ever make. You have to choose between being a victim of cancer or to be a fighter and survivor of cancer. I thank God everyday that he gave my mom the resolve and determination to fight like hell. It might seem like an easy choice, who wouldn’t want to live? But it isn’t as simple as choosing life because what you’re really choosing is life with cancer. And life with cancer means hospitalizations, surgeries, treatment, side effects etc. It takes a strong person to choose life with cancer. It is not an easy life. It’s a life filled with countless doctor visits, pain, fear, isolation, long treatments, and a lot of days where you feel lousy.

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I think as a culture we tend to give a sympathetic head tilt to someone battling cancer and maybe there is a time where that is helpful. But after walking alongside my mom through two cancer battles I think a more appropriate response to someone living with cancer might be applause, standing ovations, and endless high fives. What I’ve learned watching my mom and others throughout the course of her treatment is that they are the brave and courageous ones among us.

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Everyday they are faced with the reality of their own mortality, battling a disease that could take their lives, but they get up, face the truth, and still, they choose to fight. The truth is, we each face the same mortality, but most of us choose to live life as though it isn’t so. Even after remission, a cancer survivor never goes back to life before cancer. Sure, on the outside it may seem that way, but on the inside nothing is the same. They continue “fighting” cancer long after it’s left their bodies. After a cancer diagnosis, a headache is never just a headache again. There’s that fear and nagging question “Is the cancer back?” I experienced this with my mom just last month when we found out she had fractured her leg. For someone who hasn’t ever been diagnosed with cancer a fracture would be simple enough to diagnose and soon you’d be on your way. For my mom, there was the slight suspicion that her fracture could have been a result of cancer spread. She was hospitalized for a couple of days and during that time she had a bone scan to rule out cancer. Thankfully there was no sign of it and it actually is just a fracture. A cancer survivor isn’t someone who “survived” cancer, it is someone who is surviving and living even beyond cancer. It is someone who chooses to embody what it means to be a survivor rather than a victim of cancer. The temptation is always there to live under the dark cloud of fear and what ifs, but continuing to choose life is what makes them true survivors.

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Cancer patients are the gems among us that, truth be told, we look away from when we see because we don’t want to face our own mortality. I saw this so clearly during my mom’s cancer treatment, people in her life that I thought for sure would walk beside her were nowhere to be found. When the reality is, we should be taking notes; because I think when we’re honest we all want to live brave and courageous lives. We can start by being brave and courageous enough to not look the other way, but instead walk alongside those battling cancer.

Mom joining UCI and #TheAntiCancer movement

Mom joining UCI and #TheAntiCancer movement

Mom rockin' her freshly shaved head

Mom rockin’ her freshly shaved head

If I could go back and somehow spare my mom of her cancer diagnosis, most of the time I think I would…but when I ask her if she would trade it her answer is always no. Because of her bravery and courage, she can see the value in the journey. Relationships that were formed, lessons that were learned, a fire in her heart to live that might have stayed only just a flicker. The list can go on and on. Everyday she chooses life, joy, and gratitude. And I’m amazed by her all the time, but today as we raise awareness, share our stories, pause and remember those who were taken too soon by this disease, I want to take a moment to honor the choice she made to fight, even when she wanted to give up. She is my inspiration and my hero. Momma, consider this your virtual applause and standing ovation.

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I hope that in my lifetime I get to see a definitive cure for all forms of this disease and I am grateful for the men and women who dedicate their lives to research and science to make this hope a reality. I am especially grateful for the amazing doctors that joined mom’s dream team and continue to care for and support her.

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None of us know what tomorrow will bring, tell the ones you love that you love them and tonight hold them just a little tighter and just a few seconds longer.

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With A Full Heart…

It is hard to put into words all that I feel in my heart tonight, but I wouldn’t be me if I didn’t try so here it goes…

In the early hours of this morning as we were at home preparing to make the trip here to the hospital for mom’s surgery, the fear and anxiety were tangible. And while it may seem contradictory, peace and faith were just as present. I saw it in my mom’s eyes, her eyes spoke what we all felt on different levels; “Is this really gonna be okay?”

Mom, Daniel, and I early this morning before heading to this hospital

Mom, Daniel, and I early this morning before heading to this hospital

 We got to the hospital, got her all checked in and then we waited. When they called her back to pre-op, I was relieved to find out that I could go and be with her until they wheeled her off to the Operating Room. The fear and nervousness were still evident, but they were now accompanied by a really strange exhilaration and excitement. The last 6 months had been leading up to this moment. There was both peace and anxiety as we said our “see you soons” and off she went.

 When we had first gone to pre-op, none of the family had arrived yet, but by the time I came out after they took mom to the OR I walked out into the arms of some of the greatest people in my world. And then we sat and we waited…

Entrance to the UCI Surgical Procedure Waiting Area where we spent most of the day.

Entrance to the UCI Surgical Procedure Waiting Area where we spent most of the day.

I was much more at ease than I thought I would be overall, but there were those moments when fear and doubt would try to creep in. And with the love of those around me, and all the people that have walked with us in prayer, I was quickly reminded of all that God has already brought us through and peace would return.

 When we first checked in, they gave me this pager so that they could get a hold of me if they needed to, and to keep me updated throughout the day. To say I was attached to it would be an understatement. I was downstairs just about to head back up to the waiting area when my pager went off; panic and fear kicked in as I ran up the stairs and saw our doctor standing in the waiting area. I made my way to him as quickly as I could and then we went into the consult room. Now, this is the attending doctor on my mom’s oncology team and he is one of the best in his field, but he is on the serious side and so I had to really listen to his words carefully. I tried to catch my breath from running up the stairs and back to the waiting area as he began. His expression was not indicative of whether or not this was good news so I did my best to really focus in on what he was saying. And it slowly began to register. “We successfully removed the tumors and completed everything else we intended to do, there were no surprises, she didn’t lose much blood and when I left they were just finishing up the closing process. In no way can this surgery be curative, but with some more chemotherapy, if she continues to respond as well as she already has, it’s possible she will be feeling good for a long time. The surgery went as well as we could have hoped.”

 Shaking and overwhelmed and trying to process everything I had just been told, I got to go back out into the waiting room and tell everyone else the good news. My heart was relieved, overjoyed and anxious as I had to wait in anticipation for the moment they would let us see her in recovery. About an hour or so later, Daniel and I were able to go back and see her. I don’t think there are words to describe what I felt seeing her. Her eyes and smile lit up when she saw us and it’s safe to say she saw the same thing in ours. Since she hadn’t been awake for very long, she hadn’t heard the news yet. We explained to her that surgery was successful and that they got everything, in disbelief she said “Really?” We said “Yes, mom, you did it.” And immediately she said “Thank you Jesus.” That’s my mom.

 Now I’m sitting here as we prepare to settle in for the night and I can’t stop looking at her. I cannot possibly express how grateful I am tonight to be able to look over and see her, though in pain, still focused on the fight. Still here with us…because He is with us. A little bit ago mom and I were talking about how on this side of surgery we wonder what we were so afraid of, but the reality is that it was really big, scary and a huge risk. It was a big deal. And I told her how I wonder if it had to be big because only in a moment like that would choosing to trust Him be a true test of faith. Though, often times, still with doubt and worry, because of her strength and example we made the decision to trust and surrender to Him and His will. Tonight I sit here in awe of the remarkable woman I get to call mom and I cannot thank Him enough for His goodness and His grace.

 Friends and Family, I have been so blown away by your love and support; you all have been so amazing. We are humbled and indescribably grateful for all that have stood with us in prayer as we have walked this road. I pray that His light and love surround you tonight, and always. Please know that I pray for you and thank God for you.

 With unending love and gratitude,

Leslie Danielle