Waiting Room

During the weeks before mom’s official diagnosis when she was in an out of the hospital, I remember having a conversation with my cousin Isaac in which I asked him a question that I was afraid to know the answer to, but needed to know the answer to. Isaac knew what it was to experience your mom being diagnosed and what life after that diagnosis was like. While I was aware that every diagnosis and every person/family is different, my mind that has a strong need to just “figure things out” needed to know his story. With fear I asked him, “what happens if its cancer?” He went on to give me some practical insight into the conversations regarding treatment options and things like that, but knowing the depths of what I was really asking, it was his next response that stayed with me and has shaped so many moments for me in the months that followed. He told me to imagine myself in a waiting room where there’s different doors that lead to different rooms. Maybe one says its cancer, another one says it’s not, maybe there are doors that you can’t even make out the signs on, but the thing is, you’re in the waiting room. You don’t know which door you’re going to have to walk through, so don’t walk through doors you aren’t being asked to walk through. It’s hard, but you’re in the waiting room, so you have to wait. [Isaac is one of the smartest people I know…wouldn’t you agree? He’s one of my dearest friends and life editors AND he just happens to be my cousin too! Score!]

waiting room

Yesterday’s Waiting Room

Since that conversation, I have spent more times in [literal and metaphorical] waiting rooms than I can count; waiting rooms at the doctor’s office, radiology waiting rooms, surgical waiting rooms, and of course the seemingly permanent “what if” waiting room in my mind. Can I be honest with you about something? Even after 3 years and waiting rooms becoming a frequent and normal occurrence, I still suck at the waiting. I spent a large portion of the day yesterday in the surgical waiting room and from the moment we checked mom in, they handed me a pager. I realize that [in their minds at least] it is an efficient way to keep track of the families while their loved one is in surgery and maybe provide some peace of mind and I can appreciate that sentiment, but I also kind of hate the pagers. I think I hate them because they tend to be a constant reminder of the waiting that I’m stuck doing. I can never decide if I want it to go off because these pagers are terrifying when they go off. Ask anyone that has been with me on a surgery day, I jump every time one of them goes off and it’s not even mine! You see, much like the waiting itself, when one of these pagers goes off, you have zero indication as to whether it’s good news or bad news and those moments between it going off and you walking up to the desk are the absolute worst. The truth is, this tangent about the pagers isn’t really relevant to where I’m going with this, but I just needed it to be known, I have a love/hate relationship with the pagers that is mostly hate until it buzzes with the end result of good news, at which point I love it.

Every time I find myself in one of the particularly difficult waiting rooms, I always reflect back on Isaac’s words from the very beginning of this journey. It takes a lot of mental discipline for me to refrain from walking through doors before I’ve been called to and I don’t always possess that kind of discipline. More often than I’d care to admit, I pace the waiting room (both literally and metaphorically) and I just walk up to the various “doors” just to get a glimpse of what they might possibly be if I have to walk through them. Yesterday, as I waited for the God-awful [but also glorious] pager to go off and let me know mom was okay and that I could see her, I had a new experience that added to the depths of this waiting room business. I have always been so blessed that I have never been alone in a surgical waiting room. There are always some of our people there and I can’t tell you how much “easier” the waiting can be when you have your people with you. In addition to that we have such a large network of people that walk with us in spirit and carry us in love in prayer. But yesterday I had a new experience…in the area we chose to sit in to do our waiting, there was a couple sitting there as well. It wasn’t simply because they were sitting near us, there was something else that just made my heart both ache and feel drawn to them at the same time. Throughout the day we learned that they were waiting for their 12-year-old daughter to get out of a 6-hour brain surgery. You guys, I can’t even begin to imagine their poor momma and daddy hearts, but I could see the weight in their eyes as well as the indescribable depths of love they have for their sweet girl. Through conversation I learned that the surgeon that was working on their daughter, was the only one in the country that could perform the complicated surgery that she needed. So, they traveled here from Kansas and will be spending the next 15 days post-op here in a nearby hotel. We swapped stories about how we were all too familiar with hospitals and doctors. We shared relief as they found out that their daughter made it through surgery and then tried to pass the time until they would be able to see her. We talked about the weather in Kansas versus the weather here [unrelated: I’m so glad I live in California] and what fun touristy things they had done so far. We shared the same relief when I came out of the conference room after talking with my mom’s doctor and learning that she too had made it through safely. Later in the day we ran into each and shared the most recent updates on our people and I will probably never see them again, but for those hours spent in the waiting room we became each other’s people. Because there is something that happens when you’re not only in the waiting room, but when you know the agony and pain found in that waiting. I don’t wish that on anyone because the truth is, it’s awful, but if you bear the scars of knowing what that experience is like, you have a unique opportunity to be present with someone else going through it.

I wish I didn’t know what it was like, but I do and because I do, I was able to sit in a sacred space with strangers from another state [that I never even exchanged names with, social awkwardness for the win!] and help carry their burden and they helped carry mine. And when I reflect back on the day yesterday, and the last three years, I woke up this morning completely overwhelmed by gratitude. I am grateful for my waiting room friends. I am grateful that both of our people made it safely through surgery. I am grateful for every, single, painful moment that I have experienced that allowed me to lock eyes with those sweet parents and share a “me too” moment. Friends, I’m grateful for the waiting room because even though I hate it, it has become the place in which I am always met by the unending love, sweet compassion, and all sufficient grace of The One that holds me in the waiting and knows what lies beyond the waiting.

If you find yourself in one of life’s waiting rooms today and you’re hating it, just know that you are actually being equipped to one day come alongside someone in a way that no one else can because of the waiting you are going through now. And if you’re feeling a little lonely in your waiting today, let me come alongside you and hold space for you in that waiting. You’re not alone friend.

*If you think of my waiting room friends from Kansas, would you say a prayer for them? Pray for their sweet girl and speedy recovery so they can get back home to all their people*

Thanks for always walking with us in the waiting,

Leslie Danielle

World Cancer Day

blogpost368_1

It’s strange, though not surprising, that today is World Cancer Day and I happened to have standing plans to drive my grandma and great grandma to a doctor’s appointment. Out of all the doctors’ offices in Anaheim, my great grandma’s doctor’s office happens to be at Anaheim Regional Medical Center.  I sat in the parking lot and stared at the building where mom’s cancer journey began; it feels like lifetimes ago. I was having flashbacks to those first moments: “Your scan showed a large mass on your ovary that could indicate cancer.” I remember the deafening silence that followed. I remember writing these words during that hospital stay at Anaheim Regional:

Faith is so much easier to have when you don’t really need it. Sounds silly, I know. But you see, it’s the middle of the night and I’m sitting in a chair at my mom’s bedside in the hospital. I’ve always been unnerved in hospitals, but never like this. More than the eeriness of walking the hallways, or the awareness of all of the sickness here, or the strange noises coming from a patient down the hall, or the smell…you know what the most unnerving thing is? Sitting here in a dark room that is filled to the brim with questions, but completely void of answers. I like to think I have a pretty good head on my shoulders, but these are the kinds of questions that I can’t answer.

 

“Will my mom be okay?”

“Is it cancer?”

“If it is cancer, will she be okay?”

“If it is cancer, will we all be okay?”

“9 months after losing my dad, why is this happening?”

 Like I said, it feels like lifetimes ago. I got answers to most of those questions, except that last one. Nearly two years later we are all okay. This time two years ago we were in our last weeks of life as we knew it; life before cancer. During those first days and weeks when you’re still in shock upon receiving a diagnosis, it’s easy to feel like a victim of this disease. I mean, it is attacking you, but there’s this shift that happens as the shock begins to wear off. Most of us go through life thinking that cancer is something that happens to other people, and other families, it will never happen to you…and then it does. All of a sudden it was my mom who had cancer. And cancer goes from being a powerless word of something that happens to other people, to this dark, powerful enemy, that is attacking you or someone you love from the inside out.

Mom, Daniel, and I the morning of mom's surgery before heading to the hospital 08/23/14

Mom, Daniel, and I the morning of mom’s surgery before heading to the hospital 08/23/14

Shortly after this happens you are faced with a choice and it is possibly one of the most important choices you will ever make. You have to choose between being a victim of cancer or to be a fighter and survivor of cancer. I thank God everyday that he gave my mom the resolve and determination to fight like hell. It might seem like an easy choice, who wouldn’t want to live? But it isn’t as simple as choosing life because what you’re really choosing is life with cancer. And life with cancer means hospitalizations, surgeries, treatment, side effects etc. It takes a strong person to choose life with cancer. It is not an easy life. It’s a life filled with countless doctor visits, pain, fear, isolation, long treatments, and a lot of days where you feel lousy.

2013-08-27 22.22.56

145

126

963

I think as a culture we tend to give a sympathetic head tilt to someone battling cancer and maybe there is a time where that is helpful. But after walking alongside my mom through two cancer battles I think a more appropriate response to someone living with cancer might be applause, standing ovations, and endless high fives. What I’ve learned watching my mom and others throughout the course of her treatment is that they are the brave and courageous ones among us.

142

Everyday they are faced with the reality of their own mortality, battling a disease that could take their lives, but they get up, face the truth, and still, they choose to fight. The truth is, we each face the same mortality, but most of us choose to live life as though it isn’t so. Even after remission, a cancer survivor never goes back to life before cancer. Sure, on the outside it may seem that way, but on the inside nothing is the same. They continue “fighting” cancer long after it’s left their bodies. After a cancer diagnosis, a headache is never just a headache again. There’s that fear and nagging question “Is the cancer back?” I experienced this with my mom just last month when we found out she had fractured her leg. For someone who hasn’t ever been diagnosed with cancer a fracture would be simple enough to diagnose and soon you’d be on your way. For my mom, there was the slight suspicion that her fracture could have been a result of cancer spread. She was hospitalized for a couple of days and during that time she had a bone scan to rule out cancer. Thankfully there was no sign of it and it actually is just a fracture. A cancer survivor isn’t someone who “survived” cancer, it is someone who is surviving and living even beyond cancer. It is someone who chooses to embody what it means to be a survivor rather than a victim of cancer. The temptation is always there to live under the dark cloud of fear and what ifs, but continuing to choose life is what makes them true survivors.

10730241_10204794286728615_8965249326633519653_n

Cancer patients are the gems among us that, truth be told, we look away from when we see because we don’t want to face our own mortality. I saw this so clearly during my mom’s cancer treatment, people in her life that I thought for sure would walk beside her were nowhere to be found. When the reality is, we should be taking notes; because I think when we’re honest we all want to live brave and courageous lives. We can start by being brave and courageous enough to not look the other way, but instead walk alongside those battling cancer.

Mom joining UCI and #TheAntiCancer movement

Mom joining UCI and #TheAntiCancer movement

Mom rockin' her freshly shaved head

Mom rockin’ her freshly shaved head

If I could go back and somehow spare my mom of her cancer diagnosis, most of the time I think I would…but when I ask her if she would trade it her answer is always no. Because of her bravery and courage, she can see the value in the journey. Relationships that were formed, lessons that were learned, a fire in her heart to live that might have stayed only just a flicker. The list can go on and on. Everyday she chooses life, joy, and gratitude. And I’m amazed by her all the time, but today as we raise awareness, share our stories, pause and remember those who were taken too soon by this disease, I want to take a moment to honor the choice she made to fight, even when she wanted to give up. She is my inspiration and my hero. Momma, consider this your virtual applause and standing ovation.

Mom's Bday 205

I hope that in my lifetime I get to see a definitive cure for all forms of this disease and I am grateful for the men and women who dedicate their lives to research and science to make this hope a reality. I am especially grateful for the amazing doctors that joined mom’s dream team and continue to care for and support her.

IMG_0185-0.PNG

None of us know what tomorrow will bring, tell the ones you love that you love them and tonight hold them just a little tighter and just a few seconds longer.

10517520_10203446547155968_9188244834756621170_n

A Letter To Cancer

Dear Cancer,

In March 2013 you came crashing into our world with complete disregard for the fact that it was a world barely standing. It was a world that had come crashing down around us only 9 months earlier when it was shattered by grief over losing dad. It didn’t matter to you that we were barely learning how to breathe again after that loss. Mom’s heart was broken and every day was a fight and then you went and started attacking her from the inside out. Your timing was cruel. Things we now know as “symptoms” were things we thought were normal parts of the grieving process. And then came the pain; the excruciating, incapacitating pain. You forced us to relive the horrors of the night dad died when we took mom to the ER for the first time. And then, a few hours later…you made yourself known. The scans showed a mass that could be indicative of ovarian cancer. CANCER. We heard that all too familiar sound of a world falling to pieces again. In those early days and weeks I remember fearing even saying your name. If I had to say it, it was never louder than a whisper. You were the elephant in the room until the diagnosis was confirmed. Stage IV Cancer. You were out for blood, you had plans of claiming another life. We were told our best chance was to build a team of people that have dedicated their lives to learning your sneaky ways so that they can find a way to obliterate you. We found our people. We formed our team. Our UCI heroes didn’t wear capes…they wore white coats. And from the beginning the goal was clear: for you to lose. We fought against insurmountable odds and you threw one curve ball and complication after the other. All along the phrase that was used constantly amongst our team was to be “cautiously optimistic” and we were. I think that angered you. You see, I think one of the biggest tricks you have up your sleeve is the lies you try to tell. You want people to believe that they are alone…both our medical team and our supportive relational team made sure we were never alone. You want people to believe their situation is hopeless…our team made sure we stayed hopeful, even if it was cautiously. And you try and convince people that you’re a death sentence…but you couldn’t change this one fact: mom wanted to live. She was choosing life for as long as there was breath in her lungs. Not even you can compete with that. Between our faith, her resolve, and our team, you really never stood a chance. In December 2013 we received the news that mom was CANCER FREE! She was free! Free of you! You had no place in our world anymore and we began to rebuild a twice shattered world. In May 2014 you snuck back in. We heard the word ‘recurrence’ and our hearts were crushed with dissapointment. But, remember that team we built? Without hesitation they got back into position and put another plan in motion. Your lies tried to creep up on us, but everything was different now. Mom was a survivor this time; a champion. A warrior that wasn’t afraid to go up against you, because she knew what winning was…and winning was the only option. That incredible team of ours put her on a clinical study. You know what that means? Every single day there are people working constantly to find new ways to beat you. And mom was committed to being a part of that. You know what else? It worked. In October 2014 the words CANCER FREE were spoken again. We have no guarantee that you won’t weasel your way back into our lives, in any one of our bodies. We celebrate the wins that we have had but only for a moment before we remember all those whose lives you claim each day. You show no bias; you sneak your way into the bodies of kids, women, men, young, old etc. Every day people hear your name for the first time and every day you make worlds crash down. And the real reason behind this letter is to tell you this: the days of your wins are numbered. I believe and have faith that in my lifetime you truly will be obliterated. You have claimed and broken too many lives. You will not continue to win. The lies you tell are simply that…lies. We know what our truth is. Our truth is that we are strong. We are brave. We are courageous. We are the ones who fight against you and all odds.

As a writer, it’s not a habit of mine to spoil the ending, but just so you know and can be sure….we win. You lose.

Sincerely,
A daughter who is tired of hearing your name,
Leslie Danielle

IMG_0185.PNG